Announcements

  • Arkansas Council on Dev. Dis. approves funding to bring FRDAT program to state; 2nd state in nation to receive comprehensive training

  • EMS online training in production. Anticipated debut in Fall 2014.

  • NU FRDAT receives NYS DDPC 2014 Forging Pathways award at the DDPC awards luncheon in Saratoga, NY on May 29 Learn More →

  • Senate Hearing on "Law Enforcement Responses to Disabled Americans" held April 29th - Project Director attended Learn More →

  • NU meets with University of Maryland Center for Health and Homeland Security and discusses partnership

  • Project Director accepts invitation to join National Center on Criminal Justice and Disability advisory council

  • Project Director joins International Assn. of Chiefs of Police focus group - Mental Health of Arrestees and How It Impacts Our Officers

  • 70 law enforcement agencies and 89 FDs/EMS agencies represented at Train the Trainer sessions Learn More →

  • 911 Operators/Dispatchers Train the Trainer introduced at the NYS 911 Coordinators Association Conference May 14 in Lake George, NY

  • 130,285 individuals with developmental disabilities in New York State. Are you trained on how to properly respond? Learn More →

National Disability Organizations & Agencies

General Advocacy & Support Agencies

(See disability-specific agencies below)

  • Disability and Business Technical Assistance Centers (DBTACs)

    800-949-4232 (V/TT) Call this toll-free number for information, materials, technical assistance, or training on the ADA. This number will automatically route your call to the DBTAC in your region.

  • disAbility.gov

    U.S. federal government website for information on disability programs and services nationwide. The site connects people with disabilities, their families and caregivers to helpful resources on topics such as how to apply for disability benefits, find a job, get health care or pay for accessible housing. You can also find organizations in your community to help you get the support you need.

  • Easter Seals

    Easter Seals provides exceptional services, education, outreach and advocacy so that people living with autism spectrum disorder and other disabilities can live, learn, work and play in our communities.

  • Special Olympics International

    The mission of Special Olympics is to provide year-round sports training and athletic competition in a variety of Olympic-type sports for children and adults with intellectual disabilities, giving them continuing opportunities to develop physical fitness, demonstrate courage, experience joy and participate in a sharing of gifts, skills and friendship with their families, other Special Olympics athletes and the community.

  • TASH (formerly The Association for Persons with Severe Handicaps)

    The mission of TASH is to promote the full inclusion and participation of children and adults with significant disabilities in every aspect of their community, and to eliminate the social injustices that diminish human rights.

ADD/ADHD

  • Attention Deficit Disorder Association (ADDA)

    The Attention Deficit Disorder Association provides information, resources and networking opportunities to help adults with Attention Deficit Hyperactivity Disorder lead better lives. We provide hope, empowerment and connections worldwide by bringing together science and the human experience for both adults with ADHD and professionals who serve them.

  • Children & Adults with Attention-Deficit/Hyperactivity Disorder (CHADD)

    Organization providing education, advocacy and support for individuals with ADHD. In addition to our informative Web site, CHADD also publishes a variety of printed materials to keep members and professionals current on research advances, medications and treatments affecting individuals with ADHD.

  • Recovery.org

    Choose the best addiction recovery program for you. Overcome drug abuse, alcoholism, or a process disorder with the help of top treatment programs nationwide.

Autism Spectrum

  • Asperger Autism Spectrum Education Network (ASPEN)

    ASPEN provides families and individuals whose lives are affected by Autism Spectrum Disorders (Asperger Syndrome, Pervasive Developmental Disorder-NOS, High Functioning Autism), and Nonverbal Learning Disabilities with education about the issues surrounding the disorders, support in knowing that they are not alone and in helping individuals with ASD’s and NLD achieve their maximum potential, and advocacy in areas of appropriate educational programs, medical research funding, adult issues and increased public awareness and understanding.

  • Autism Society

    The Autism Society, the nation’s leading grassroots autism organization, exists to improve the lives of all affected by autism. We do this by increasing public awareness about the day-to-day issues faced by people on the spectrum, advocating for appropriate services for individuals across the lifespan, and providing the latest information regarding treatment, education, research and advocacy.

  • Autism Speaks

    Autism Speaks has grown into the world's leading autism science and advocacy organization, dedicated to funding research into the causes, prevention, treatments and a cure for autism; increasing awareness of autism spectrum disorders; and advocating for the needs of individuals with autism and their families.

  • Families for Early Autism Treatment (FEAT)

    Families for Early Autism Treatment, Inc. (FEAT) is a non-profit organization of parents, family members, and treatment professionals, designed to help families with children of all ages who have an Autism Spectrum Disorder (ASD). It offers a network of support where families can meet each other to discuss issues surrounding autism and treatment options

Blind/Vision Loss

  • American Council of the Blind (ACB)

    Since its inception, ACB and its affiliates have been at the forefront of the creation of policies that have shaped the opportunities that are now available to people with disabilities in our country. ACB has also effectively collaborated with Vision Rehabilitation Service providers to develop the principles and values that should be at the heart of providing adjustment and placement services to people who are blind.

  • American Federation for the Blind (AFB)

    We connect families to knowledge and support. In the business world, we guide the creation of more accessible products. We offer publications and eLearning courses to educate professionals in the field. Our advocacy helps make landmark legislation like the Americans with Disabilities Act a reality. We strive to continue the mission of Helen Keller, who championed the rights of individuals with disabilities during her 44 years at AFB.

  • National Family Association for Deaf-Blind (NFADB)

    The National Family Association for Deaf-Blind (NFADB) is a non-profit, volunteer-based family association. Our philosophy is that individuals who are deaf-blind are valued members of society and are entitled to the same opportunities and choices as other members of the community. We are the largest national network of families focusing on issues surrounding deaf blindness.

  • National Federation of the Blind (NFB)

    The National Federation of the Blind (NFB) is the oldest, largest, and most influential nationwide membership organization of blind people in the United States. Founded in 1940, the NFB advocates for the civil rights and equality of blind Americans, and develops innovative education, technology, and training programs to provide the blind and those who are losing vision with the tools they need to become independent and successful.

  • National Library Service for the Blind & Physically Handicapped (NLS)

    Through a national network of cooperating libraries, NLS administers a free library program of braille and audio materials circulated to eligible borrowers in the United States by postage-free mail.

Brain Injuries/Tumors

  • American Brain Tumor Organization

    Founded in 1973, the American Brain Tumor Association (ABTA) was the first national nonprofit organization dedicated solely to brain tumors. For 40 years, the ABTA has been providing comprehensive resources that support the complex needs of brain tumor patients and caregivers, as well as the critical funding of research in the pursuit of breakthroughs in brain tumor diagnosis, treatment and care.

  • Brain Injury Association of America (BIAA)

    The mission of the Brain Injury Association of America (BIAA) is to advance brain injury prevention, research, treatment and education and to improve the quality of life for all people affected by brain injury. We are dedicated to increasing access to quality health care and raising awareness and understanding of brain injury. With a network of state affiliates, local chapters and support groups, we are the voice of brain injury.

  • National Brain Tumor Society

    Driven by a vibrant, hopeful, and tireless community, National Brain Tumor Society’s strategic initiatives and funded programs aim to improve an understanding of all brain tumors to transform research into new and effective treatments, as quickly as possible. To achieve these goals, we foster collaboration and improvements within all facets of the drug discovery and development landscape including the private sector, government, and academia; and invest wisely in key research poised to deliver results.

Deaf/Hard of Hearing

  • Alexander Graham Bell Association for the Deaf & Hard of Hearing

    The Alexander Graham Bell Association for the Deaf and Hard of Hearing helps families, health care providers and education professionals understand childhood hearing loss and the importance of early diagnosis and intervention. Through advocacy, education, research and financial aid, AG Bell helps to ensure that every child and adult with hearing loss has the opportunity to listen, talk and thrive in mainstream society.

  • American Society for Deaf Children (ASDC)

    We believe deaf or hard-of-hearing children are entitled to full communication access in their home, school, and community. We also believe that language development, respect for the Deaf, and access to deaf and hard-of-hearing role models are important to assure optimal intellectual, social, and emotional development. We believe that consideration of communication opportunities for deaf and hard-of-hearing children should be based on facts. Research consistently demonstrates that fluency in sign language and English offers deaf children (including those with cochlear implants) and hard-of-hearing children optimal opportunities for social and academic success, and thus both should be part of their language-rich environment. We believe there should be access to identification and intervention by qualified providers, family involvement, and educational opportunities equal to those provided for hearing children. The goal should be to provide children what they need in order to become self-supporting and fulfilled adults. We affirm that parents have the right and responsibility to be primary decision-makers and advocates. For this role, parents need education, access to information, and support.

  • American Speech-Language-Hearing Association (ASHA)

    ASHA is the national professional, scientific, and credentialing association for more than 173,070 members and affiliates who are audiologists, speech-language pathologists, speech, language, and hearing scientists, audiology and speech-language pathology support personnel, and students. Audiologists specialize in preventing and assessing hearing and balance disorders as well as providing audiologic treatment, including hearing aids. Speech-language pathologists identify, assess, and treat speech and language problems, including swallowing disorders.

  • Collaborative for Communication Access via Captioning (CCAC)

    The Collaborative for Communication Access via Captioning (CCAC) is the only official 501(c)(3) non-profit organization nationally and internationally with a sole focus on advocacy for captioning inclusion. Equal communication access is the goal.

  • Hands & Voices

    Hands & Voices is a non-profit, parent-driven organization dedicated to supporting families of children who are deaf or hard of hearing. We are non-biased about communication methodologies and believe that families can make the best choices for their child if they have access to good information and support. Our membership includes families who communicate manually and/or orally. From American Sign Language to cochlear implants, our organization represents people from all different approaches to, and experiences with, deafness or hearing loss. We have local chapters comprised mainly of parents along with professionals.

  • National Association of the Deaf (NAD)

    The National Association of the Deaf (NAD) is the nation's premier civil rights organization of, by and for deaf and hard of hearing individuals in the United States of America. Established in 1880, the NAD was shaped by deaf leaders who believed in the right of the American deaf community to use sign language, to congregate on issues important to them, and to have its interests represented at the national level. These beliefs remain true to this day, with American Sign Language as a core value.

  • National Cued Speech Association (NCSA)

    The National Cued Speech Association was formed in 1982 to serve the needs of parents and special educators working with children who are deaf and hard of hearing. The NCSA is primarily an advocacy organization, and focuses on outreach, family and educator support, as well as community-based education in the form of Cue Camps and sponsored workshops. The NCSA also provides instructor certification for teaching Cued Speech classes.

  • National Family Association for Deaf-Blind (NFADB)

    The National Family Association for Deaf-Blind (NFADB) is a non-profit, volunteer-based family association. Our philosophy is that individuals who are deaf-blind are valued members of society and are entitled to the same opportunities and choices as other members of the community. We are the largest national network of families focusing on issues surrounding deaf blindness.

  • Registry of Interpreters for the Deaf (RID)

    The Registry of Interpreters for the Deaf, Inc. (RID), a national membership organization, plays a leading role in advocating for excellence in the delivery of interpretation and transliteration services between people who use sign language and people who use spoken language. In collaboration with the Deaf community, RID supports our members and encourages the growth of the profession through the establishment of a national standard for qualified sign language interpreters and transliterators, ongoing professional development and adherence to a code of professional conduct.

Developmental Disabilities

  • Angelman Syndrome Foundation

    The Angelman Syndrome Foundation's mission is to advance the awareness and treatment of Angelman syndrome through education and information, research, and support for individuals with Angelman syndrome, their families and other concerned parties. We exist to give all of them a reason to smile, with the ultimate goal of finding a cure.

  • Children's Tumor Foundation

    The Children's Tumor Foundation is a not-for-profit organization dedicated to finding effective treatments for the millions of people worldwide living with neurofibromatosis (NF), a term for three distinct disorders: NF1, NF2, and schwannomatosis. NF causes tumors to grow on nerves throughout the body and can lead to blindness, bone abnormalities, cancer, deafness, disfigurement, learning disabilities, and excruciating and disabling pain.

  • International Rett Syndrome Foundation (IRSF)

    The core mission of the IRSF is to fund research for treatments and a cure for Rett syndrome while enhancing the overall quality of life for those living with Rett syndrome by providing information, programs, and services. IRSF is the largest private source of funds for biomedical and clinical research on Rett syndrome. The Foundation directs almost 90% of each dollar donated directly to program services. All donations specifically earmarked for research will be honored.

  • National Fragile X Foundation (NFXF)

  • National Organization on Fetal Alcohol Syndrome (NOFAS)

    NOFAS educates the public, practitioners, and policymakers about the risk of alcohol use during pregnancy and FASD , the leading known preventable cause of brain damage, developmental disabilities, and birth defects, and a leading known cause of learning disabilities and behavioral problems in children, adolescents, and adults.

  • Neurofibromatosis Network

    The mission of the NF Network is to find treatments and a cure for neurofibromatosis by promoting scientific research, improving clinical care, providing outreach through education and awareness, while offering hope and support to those affected by NF.

  • Prader-Willi Syndrome Association (PWSA)

    Prader-Willi Syndrome Association (USA) is an organization of families and professionals working together to raise awareness, offer support, provide education and advocacy, and promote and fund research to enhance the quality of life of those affected by Prader-Willi syndrome.

  • The Arc

    The Arc promotes and protects the human rights of people with intellectual and developmental disabilities and actively supports their full inclusion and participation in the community throughout their lifetimes.

  • Williams Syndrome Association (WSA)

    The Williams Syndrome Association (WSA) was formed in 1982 by, and for, families of individuals with Williams syndrome. The WSA is the most comprehensive resource for people and families living with Williams syndrome as well as doctors, researchers and educators. The WSA provides resources, support and the latest medical information to help your child today and throughout his/her life.

Down Syndrome

  • National Down Syndrome Congress (NDSC)

    Founded in 1973, the National Down Syndrome Congress is the country’s oldest national organization for people with Down syndrome, their families, and the professionals who work with them. We provide information, advocacy and support concerning all aspects of life for individuals with Down syndrome, and work to create a national climate in which all people will recognize and embrace the value and dignity of people with Down syndrome.

  • National Down Syndrome Society (NDSS)

    The mission of the National Down Syndrome Society is to be the national advocate for the value, acceptance and inclusion of people with Down syndrome.

Education/Therapy

  • American Occupational Therapy Association, Inc. (AOTA)

    The American Occupational Therapy Association (AOTA) is the national professional association established in 1917 to represent the interests and concerns of occupational therapy practitioners and students of occupational therapy and to improve the quality of occupational therapy services.

  • American Physical Therapy Association (APTA)

    The American Physical Therapy Association (APTA) is an individual membership professional organization representing more than 88,000 member physical therapists (PTs), physical therapist assistants (PTAs), and students of physical therapy. APTA seeks to improve the health and quality of life of individuals in society by advancing physical therapist practice, education, and research, and by increasing the awareness and understanding of physical therapy's role in the nation's health care system.

  • American Therapeutic Recreation Association (ATRA)

    The vision of the American Therapeutic Recreation Association is to be the premiere professional membership association representing recreational therapists, consumers and stakeholders. The mission of the American Therapeutic Recreation Association is to serve as a member-driven association that collectively supports the recreational therapy profession.

  • Council for Exceptional Children (CEC)

    The Council for Exceptional Children (CEC) is the largest international professional organization dedicated to improving the educational success of individuals with disabilities and/or gifts and talents. CEC advocates for appropriate governmental policies, sets professional standards, provides professional development, advocates for individuals with exceptionalities, and helps professionals obtain conditions and resources necessary for effective professional practice.

  • National Association of Private Special Education Centers

    NAPSEC member programs provide educational therapeutic services to both publically and privately placed individuals that are not able to be successfully educated in the regular education environment. These services also include infants and toddlers that are served by our early intervention service members and our postsecondary college experience and adult living programs that serve individuals who have graduated or who are over 21 and are no longer eligible for services under IDEA.

Epilepsy

  • Epilepsy Foundation

    The Epilepsy Foundation, a national non-profit with more than 47 affiliated organizations throughout the United States, has led the fight against seizures since 1968. The Foundation is an unwavering ally for individuals and families impacted by epilepsy and seizures. The Foundation works to prevent, control and cure epilepsy through community services; public education; federal and local advocacy; and supporting research into new treatments and therapies. The Foundation works to ensure that people with seizures have the opportunity to live their lives to their fullest potential.

Family/Parents

  • Center for Parent Information & Resources (CPIR)

    The Center for Parent Information and Resources (CPIR) serves as a central resource of information and products to the community of Parent Training Information (PTI) Centers and the Community Parent Resource Centers (CPRCs), so that they can focus their efforts on serving families of children with disabilities.

  • Family Voices

    Family Voices aims to achieve family-centered care for all children and youth with special health care needs and/or disabilities. Throughout our national grassroots network, we provide families resources and support to make informed decisions, advocate for improved public and private policies, build partnerships among families and professionals, and serve as a trusted resource on health care.

  • National Center on Shaken Baby Syndrome (NCSBS)

    The National Center has a mission: “To educate and train parents and professionals, and to conduct research that will prevent the shaking and abuse of infants in the USA”.

  • Parents Helping Parents

    As a parent-directed, community-based organization, PHP's mission was developed in response to the need in our community for information, training, and support services for families who have children with special needs and the professionals who serve them.

  • Pathways

    Since 1985, Pathways.org has used evidence-based practice and multimedia as tools to promote each child’s fullest inclusion. We strive to empower health professionals and parents with knowledge of the benefit of early detection and early intervention for children’s sensory, motor, and communication development.

Independent Living

  • Independent Living Institute

    The Independent Living Institute (ILI) is a policy development center specializing in consumer-driven policies for disabled peoples' self-determination, self-respect and dignity. We run a virtual library and interactive services for persons with extensive disabilities. We are experts in designing and implementing direct payment schemes for personal assistance services, mainstream taxi and assistive technology.

  • Independent Living Research Utilization

    ILRU, founded in 1977, has a long history of providing research, education and consultation in the areas of independent living, the Americans with Disabilities Act, home and community-based services and health issues for people with disabilities.

  • Job Accommodation Network (JAN)

    The Job Accommodation Network (JAN) is the leading source of free, expert, and confidential guidance on workplace accommodations and disability employment issues. Working toward practical solutions that benefit both employer and employee, JAN helps people with disabilities enhance their employability, and shows employers how to capitalize on the value and talent that people with disabilities add to the workplace.

  • National Council on Independent Living (NCIL)

    As a membership organization, NCIL advances independent living and the rights of people with disabilities through consumer-driven advocacy. NCIL envisions a world in which people with disabilities are valued equally and participate fully.

Learning Disabilities

  • Learning Ally

    While Learning Ally remains a leading provider of audiobooks – including the world’s largest library of audio textbooks – our organization has blossomed to become a critical resource to not only students in need, but also their parents, families, and educators. From delivering parent services, webinars and tools for managing a learning difference to providing links to support networks, certifiers and professionals in the field of learning disabilities, our goal is provide a community of support – online, on the phone and in person. We help parents manage the challenges that come with supporting a child with a reading and learning disability.

  • Learning Disabilities Association of America (LDA)

    LDA’s mission is to create opportunities for success for all individuals affected by learning disabilities and to reduce the incidence of learning disabilities in future generations.

  • National Center for Learning Disabilities (NCLD)

    The mission of NCLD is to improve the lives of the 1 in 5 individuals nationwide with learning and attention issues—by empowering parents and young adults, transforming schools and advocating for equal rights and opportunities. We envision a society in which every individual possesses the academic, as well as the social and emotional skills needed to succeed in school, at work and in life.

  • Smart Kids with Learning Disabilities

    Smart Kids with Learning Disabilities® is a non-profit organization dedicated to empowering the parents of children with learning disabilities (LD) and attention-deficit disorder (ADHD). Our mission is to educate, guide and inspire families of children with learning disabilities or ADHD—and to change the perception of learning disabilities as a stigmatizing condition.

  • The International Dyslexia Association

    The International Dyslexia Association (IDA) is a 501(c)(3) non-profit, scientific, and educational organization dedicated to the study and treatment of the learning disability, dyslexia as well as related language-based learning differences. We are the oldest such organization in the U.S. serving individuals with dyslexia, their families, and professionals in the field. We have approximately 8,500 members - 60% in the field of education and 30% are individuals with dyslexia or parents of children who are dyslexic.

Medical

  • American Diabetes Association

    We lead the fight against the deadly consequences of diabetes and fight for those affected by diabetes. We fund research to prevent, cure and manage diabetes. We deliver services to hundreds of communities. We provide objective and credible information. We give voice to those denied their rights because of diabetes

  • Aplastic Anemia & MDS International Foundation

    The Aplastic Anemia & MDS International Foundation (AA&MDSIF) is the world's leading nonprofit health organization dedicated to supporting patients and families living with aplastic anemia, myelodysplastic syndromes (MDS), paroxysmal nocturnal hemoglobinuria (PNH), and related bone marrow failure diseases. AA&MDSIF provides answers, support and hope to thousands of patients and their families around the world.

  • Asthma & Allergy Foundation of America (AAFA)

    The Asthma and Allergy Foundation of America (AAFA), a not-for-profit organization founded in 1953, is the leading patient organization for people with asthma and allergies, and the oldest asthma and allergy patient group in the world.

  • Galactosemia Foundation

    Galactosemia Foundation, formally, Parents of Galactosemic Children, Inc is a non-profit charitable organization. Founded in February 1985 by a small group of mothers in New York, the Galactosemia Foundation realizes the need for further information and networking between affected families and professionals. Metabolic Clinics across the nation continue to assist the Galactosemia Foundation in researching families and information. Today our mailing list includes over 1,000 families and extended families, professionals and clinics, media groups, donors, and numerous international contacts. Objectives and functions are achieved by unpaid volunteers.

  • Genetic Alliance

    Genetic Alliance is the world’s leading nonprofit health advocacy organization committed to engaging individuals, families, and communities in transforming health. Genetic Alliance’s network includes more than 1,200 disease-specific advocacy organizations, as well as thousands of universities, private companies, government agencies, and public policy organizations. The network is a dynamic and growing open space for shared resources, creative tools, and innovative programs.

  • Hydrocephalus Association

    The Hydrocephalus Association provides support, education and advocacy for people whose lives have been touched by hydrocephalus and the professionals who work with them. We strive to ensure that families are empowered with educational materials, informed about the latest research, and have access to quality health care. We advocate for increased research and funding to advance understanding, improve diagnosis and treatment, and find a cure.

  • Leukemia & Lymphoma Society (LLS)

    The Leukemia & Lymphoma Society (LLS) is the world's largest voluntary (nonprofit) health organization dedicated to funding blood cancer research and providing education and patient services.

  • National Reye's Syndrome Foundation

    In 1974, the National Reye's Syndrome Foundation, a health advocacy organization, was incorporated as a 501(c)3 charity, whose mission is to eradicate the incidence of Reye's Syndrome.

  • Solve ME/CFS Initiative

    The CFIDS Association of America was founded in 1987 and has established itself as the leading charitable organization dedicated to chronic fatigue syndrome (CFS) – also known as chronic fatigue and immune dysfunction syndrome (CFIDS) and myalgic encephalomyelitis (ME). Our mission is to make ME/CFS widely understood, diagnosable, and treatable by stimulating participatory, patient centered research aimed at the early detection, objective diagnosis and effective treatment of ME/CFS through expanded public, private and commercial investment.

Mental Health

  • Anxiety & Depression Association of America (ADAA)

    The Anxiety and Depression Association of America (ADAA) is the leader in education, training, and research for anxiety, OCD, PTSD, depression, and related disorders.

  • International OCD Foundation

    The mission of the International OCD Foundation is to help individuals with obsessive compulsive disorder (OCD) to live full and productive lives. Our aim is to increase access to effective treatment, end the stigma associated with mental health issues, and foster a community for those affected by OCD and the professionals who treat them.

  • Mental Health America (MHA)

    MHA, the leading advocacy organization addressing the full spectrum of mental and substance use conditions and their effects nationwide, works to inform, advocate and enable access to quality behavioral health services for all Americans. With nearly a century of experience, MHA has an established record of effective national and grassroots actions that promote mental health, and address mental and substance use issues with compassionate and concrete solutions.

  • National Alliance on Mental Health (NAMI)

    NAMI is the National Alliance on Mental Illness, the nation’s largest grassroots mental health organization dedicated to building better lives for the millions of Americans affected by mental illness. NAMI advocates for access to services, treatment, supports and research and is steadfast in its commitment to raise awareness and build a community for hope for all of those in need.

  • National Federation of Families for Children's Mental Health

    The National Federation of Families for Children’s Mental Health is a national family-run organization linking more than 120 chapters and state organizations focused on the issues of children and youth with emotional, behavioral, or mental health needs and their families.

Physical & Mobility

  • Alliance for Technology Assistance

    The mission of the ATA is to increase the use of technology by children and adults with disabilities and functional limitations. ATA encourages and facilitates the empowerment of people with disabilities to participate fully in their communities. Through public education, information and referral, capacity building in community organizations, and advocacy/policy efforts, the ATA enables millions of people to live, learn, work, define their futures, and achieve their dreams.

  • Children's Craniofacial Association (CCA)

    Children's Craniofacial Association is a national, 501(c)3 nonprofit organization, headquartered in Dallas, Texas. Nationally and internationally, CCA addresses the medical, financial, psychosocial, emotional, and educational concerns relating to craniofacial conditions.

  • FACES: The National Craniofacial Association

    FACES assists families who would otherwise be financially unable to take their child to major medical centers where specialized craniofacial teams can provide the safest and most advanced treatments for building a face and skull.

  • International Fibrodysplasia Ossificans Progressiva Foundation (IFOPA)

    The International FOP Association is a 501(c)(3) non-profit organization supporting medical research, education and communication for those afflicted by the rare genetic condition Fibrodysplasia Ossificans Progressiva (FOP). Our mission is to fund research to find a cure for FOP while supporting individuals and their families through education, public awareness and advocacy. Our vision is a cure for FOP.

  • Little People of America

    LPA is dedicated to improving the quality of life for people with dwarfism throughout their lives while celebrating with great pride Little People’s contribution to social diversity. LPA strives to bring solutions and global awareness to the prominent issues affecting individuals of short stature and their families.

  • Multiple Sclerosis Association of America (MSAA)

    The Multiple Sclerosis Association of America (MSAA) is a leading resource for the entire MS community, improving lives today through vital services and support. The Multiple Sclerosis Association of America (MSAA) is a national, nonprofit organization founded in 1970 and is dedicated to improving lives today. MSAA provides ongoing support and direct services to individuals with MS, their families, and their care partners.

  • Muscular Dystrophy Association

    The Muscular Dystrophy Association is the world’s leading nonprofit health agency dedicated to finding treatments and cures for muscular dystrophy, amyotrophic lateral sclerosis (ALS) and other neuromuscular diseases. We do so by funding worldwide research; by providing comprehensive health care services and support to MDA families nationwide; and by rallying communities to fight back through advocacy, fundraising and local engagement.

  • National Ataxia Foundation

    The National Ataxia Foundation is dedicated to improving the lives of persons affected by ataxia through support, education, and research.

  • National Library Service for the Blind and Physically Handicapped (NLS)

    Through a national network of cooperating libraries, NLS administers a free library program of braille and audio materials circulated to eligible borrowers in the United States by postage-free mail.

  • National Multiple Sclerosis Society (NMSS)

    We help each person address the challenges of living with MS through our 50-state network of chapters. The Society helps people affected by MS by funding cutting-edge research, driving change through advocacy, facilitating professional education, and providing programs and services that help people with MS and their families move their lives forward.

  • National Scoliosis Foundation (NSF)

    The National Scoliosis Foundation (NSF) is a patient-led nonprofit organization dedicated since 1976 to helping children, parents, adults, and health-care providers to understand the complexities of spinal deformities such as scoliosis.

  • Osteogenesis Imperfecta Foundation

    The Osteogenesis Imperfecta Foundation, Inc. (OI Foundation) is the only voluntary national health organization dedicated to helping people cope with the problems associated with osteogenesis imperfecta. The Foundation's mission is to improve the quality of life for people affected by OI through research to find treatments and a cure, education, awareness, and mutual support.

  • Spina Bifida Association

    The Spina Bifida Association (SBA) serves adults and children who live with the challenges of Spina Bifida. Since 1973, SBA has been the only national voluntary health agency solely dedicated to enhancing the lives of those with Spina Bifida and those whose lives are touched by this challenging birth defect. Its tools are education, advocacy, research, and service.

  • Tuberous Sclerosis Alliance

    The Tuberous Sclerosis Alliance is dedicated to finding a cure for tuberous sclerosis complex (TSC) while improving the lives of those affected.

  • United Cerebral Palsy

    United Cerebral Palsy (UCP) educates, advocates and provides support services to ensure a life without limits for people with a spectrum of disabilities. UCP and its nearly 100 affiliates have a mission to advance the independence, productivity and full citizenship of people with a spectrum of disabilities by providing services and support to more than 176,000 children and adults every day—one person at a time, one family at a time. UCP works to enact real change—to revolutionize care, raise standards of living and create opportunities—impacting the lives of millions living with disabilities.

  • United Spinal Association

    United Spinal Association’s mission is to improve the quality of life of all people living with spinal cord injuries and disorders (SCI/D).

Speech & Communication

  • American Speech-Language-Hearing Association (ASHA)

    ASHA is the national professional, scientific, and credentialing association for more than 173,070 members and affiliates who are audiologists, speech-language pathologists, speech, language, and hearing scientists, audiology and speech-language pathology support personnel, and students. Audiologists specialize in preventing and assessing hearing and balance disorders as well as providing audiologic treatment, including hearing aids. Speech-language pathologists identify, assess, and treat speech and language problems, including swallowing disorders.

  • National Cued Speech Association (NCSA)

    The National Cued Speech Association was formed in 1982 to serve the needs of parents and special educators working with children who are deaf and hard of hearing. The NCSA is primarily an advocacy organization, and focuses on outreach, family and educator support, as well as community-based education in the form of Cue Camps and sponsored workshops. The NCSA also provides instructor certification for teaching Cued Speech classes.

  • National Stuttering Association (NSA)

    The NSA provides support, friendship, and information to the stuttering community, instilling the sense of self-worth so often missing in the lives of those who battle this disorder. With members nationwide and over 100 self-help support groups in the United States, the NSA provides information about stuttering, increases public awareness of stuttering, serves as a support and advocacy group, and is a referral organization for speech therapy sources throughout the United States.

  • The Childhood Apraxia of Speech Association of North America (CASANA)

    The Childhood Apraxia of Speech Association is a 501(c)(3) nonprofit publicly funded charity whose mission is to strengthen the support systems in the lives of children with apraxia so that each child is afforded their best opportunity to develop speech and communication.

  • The Stuttering Foundation

    The Stuttering Foundation provides free online resources, services and support to those who stutter and their families, as well as support for research into the causes of stuttering.

Tourette Syndrome

  • National Tourette Syndrome Association (TSA)

    Founded in 1972 in Bayside New York, the national Tourette Syndrome Association is the only national voluntary non-profit membership organization in this field. Our mission is to identify the cause of, find the cure for and control the effects of Tourette Syndrome. We offer resources and referrals to help people and their families cope with the problems that occur with TS. We raise public awareness and counter media stereotypes about TS. Our membership includes individuals, families, relatives, and medical and allied professionals working in the field.

Other

  • Disability and Business Technical Assistance Centers (DBTACs)

    800-949-4232 (V/TT) Call this toll-free number for information, materials, technical assistance, or training on the ADA. This number will automatically route your call to the DBTAC in your region.

  • disAbility.gov

    U.S. federal government website for information on disability programs and services nationwide. The site connects people with disabilities, their families and caregivers to helpful resources on topics such as how to apply for disability benefits, find a job, get health care or pay for accessible housing. You can also find organizations in your community to help you get the support you need.

  • Easter Seals

    Easter Seals provides exceptional services, education, outreach and advocacy so that people living with autism spectrum disorder and other disabilities can live, learn, work and play in our communities.

  • Special Olympics International

    The mission of Special Olympics is to provide year-round sports training and athletic competition in a variety of Olympic-type sports for children and adults with intellectual disabilities, giving them continuing opportunities to develop physical fitness, demonstrate courage, experience joy and participate in a sharing of gifts, skills and friendship with their families, other Special Olympics athletes and the community.

  • TASH (formerly The Association for Persons with Severe Handicaps)

    The mission of TASH is to promote the full inclusion and participation of children and adults with significant disabilities in every aspect of their community, and to eliminate the social injustices that diminish human rights.